For healthcare professionals practicing across Europe Middle East and Africa only.
Evolving Achondroplasia Care: Relationship Between Height and Quality of Life

Wednesday, 13 October

17:00 - 18:30 CET

Virtual Event

Dr Melita Irving
Consultant in clinical genetics
Guy’s and St Thomas’, UK
Dr Melita Irving is a consultant in clinical genetics at Guy’s and St Thomas’ NHS Trust. Melita sub specialises in rare diseases of the skeleton and conducts clinical trials of new medications to improve the health and wellbeing of affected children.
Dr Heike Hoyer-Kuhn
Paediatrician, Children's Hospital
University of Cologne, Germany
Dr Heike Hoyer-Kuhn is a Consultant Paediatrician at the Children’s Hospital, University of Cologne, Germany. Her interests lie in clinical care, focused on children and adolescents with Osteogenesis Imperfecta and skeletal dysplasia.
Jamie O'Hara
Professor of Health Economics
University of Chester, UK
Jamie is a health economist by background, with expertise in practical and technical applications of the discipline across industries. He has worked with a range of organisations across the public, private and third sectors, including EC and EU and numerous charitable organisations.
Inês Alves
Patient expert
Founder of the ‘Beyond Achondroplasia’ blog
ERN-BOND, Portugal
Inês Alves is a patient representative for the European Reference Network for Rare Bone Disorders and a patient expert at the European Medicines Agency and the IMI. is organised and funded by BioMarin.
The content has been developed in conjunction with the Editorial Committee.

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